{"id":105657,"date":"2019-04-06T02:59:18","date_gmt":"2019-04-06T01:59:18","guid":{"rendered":"http:\/\/www.philippeau.eu\/blog\/?p=105657"},"modified":"2023-12-02T09:13:28","modified_gmt":"2023-12-02T07:13:28","slug":"compare-et-etude-cercan","status":"publish","type":"post","link":"https:\/\/www.philippeau.eu\/blog\/compare-et-etude-cercan\/","title":{"rendered":"ComPaRe et \u00e9tude CERCAN"},"content":{"rendered":"<h2>ComPaRe<\/h2>\n<p>Depuis le 10 f\u00e9vrier 2019 je me suis inscrit sur la plateforme ComPaRe, la <a href=\"https:\/\/compare.aphp.fr\" target=\"_blank\" rel=\"noopener noreferrer\">communaut\u00e9 des patients ayant choisi de faire avancer la recherche<\/a> sur les <a href=\"https:\/\/compare.aphp.fr\/l-etude\/liste-maladies.html\" target=\"_blank\" rel=\"noopener noreferrer\">maladies chroniques<\/a>.<\/p>\n<p>Apr\u00e8s inscription le but est de r\u00e9pondre \u00e0 des questionnaires en rapport avec notre maladie chronique directement depuis internet. Nos r\u00e9ponses sont \u00e9tudi\u00e9es, analys\u00e9es et utilis\u00e9es anonymement. Dans l&rsquo;id\u00e9al on s&rsquo;engage \u00e0 participer \u00e0 cette \u00e9tude pour une dur\u00e9e de 10 ans, mais bien entendu l&rsquo;on reste libre de s&rsquo;arr\u00eater quand on le veut.<\/p>\n<h2>Cohorte neuropathie p\u00e9riph\u00e9rique<\/h2>\n<p>Je participe \u00e0 l&rsquo;\u00e9tude sur la <a href=\"http:\/\/www.philippeau.eu\/blog\/cancer-du-poumon\/douleurs-neuropathiques-et-traitements\/\">neuropathie p\u00e9riph\u00e9rique<\/a>. \u00c9tant en r\u00e9mission (gu\u00e9ri ?) et sorti du suivi \u00e0 5 ans pour mon cancer du poumon, je ne peux pas participer \u00e0 cette \u00e9tude. Apr\u00e8s contact sur la plateforme, une personne me r\u00e9pond :<\/p>\n<blockquote>\n<p>\u00ab\u00a0En th\u00e9orie, nous ne prenons pas en compte les anciennes maladies dans ComPaRe (ni anciens traitements, \u00e9v\u00e9nements de sant\u00e9, etc.). N\u00e9anmoins, pour cette maladie, cela me semble important de la noter. Je vais entrer cette donn\u00e9e pour vous car vous n&rsquo;en aurez pas la possibilit\u00e9 de votre cot\u00e9.\u00a0\u00bb.<\/p>\n<\/blockquote>\n<p>Cela me semble normal car sans ce cancer du poumon, je n&rsquo;aurais pas eu cette neuropathie p\u00e9riph\u00e9rique.<\/p>\n<p><iframe loading=\"lazy\" title=\"ComPaRe, d\u00e9j\u00e0 un an. Et apr\u00e8s ?\" width=\"1140\" height=\"641\" src=\"https:\/\/www.youtube.com\/embed\/zrENdVc23os?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p><iframe loading=\"lazy\" title=\"\u00c0 qui s&#039;adresse la Communaut\u00e9 de Patients pour la Recherche  ?\" width=\"1140\" height=\"641\" src=\"https:\/\/www.youtube.com\/embed\/Zu8H-enJGxo?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p>\u00c0 noter que l&rsquo;association <a href=\"https:\/\/www.patientsenreseau.fr\/\" target=\"_blank\" rel=\"noopener noreferrer\">Patients en r\u00e9seau<\/a> est <a href=\"https:\/\/compare.aphp.fr\/2016-06-13-14-55-01\/nos-partenaires-associatifs.html\" target=\"_blank\" rel=\"noopener noreferrer\">partenaire<\/a> de ComPaRe. Je vous encourage vivement \u00e0 venir nous rejoindre. Donnez un peu de votre temps en r\u00e9pondant aux questionnaires si vous \u00eates atteint d&rsquo;une maladie chronique.<\/p>\n<h2>Vid\u00e9o ComPaRe<\/h2>\n<p>S\u00e9minaire Cancer du poumon &#8211; ComPaRe<br \/>\nci-contre<\/p>\n<p><iframe loading=\"lazy\" title=\"S\u00e9minaire Cancer du poumon - ComPaRe\" width=\"1140\" height=\"641\" src=\"https:\/\/www.youtube.com\/embed\/ejfsbULlgeo?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<h2>\u00c9tude CERCAN<\/h2>\n<figure id=\"attachment_105934\" aria-describedby=\"caption-attachment-105934\" style=\"width: 300px\" class=\"wp-caption alignleft center\"><a  href=\"http:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN.jpg\" data-rel=\"lightbox-gallery-0\" data-rl_title=\"CERCAN\" data-rl_caption=\"\u00c9tude CERCAN\" title=\"CERCAN\"><img loading=\"lazy\" decoding=\"async\" data-attachment-id=\"105934\" data-permalink=\"https:\/\/www.philippeau.eu\/blog\/compare-et-etude-cercan\/cercan\/\" data-orig-file=\"https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN.jpg\" data-orig-size=\"1265,900\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"CERCAN\" data-image-description=\"\" data-image-caption=\"&lt;p&gt;\u00c9tude CERCAN&lt;\/p&gt;\n\" data-large-file=\"https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN-1024x729.jpg\" class=\"size-medium wp-image-105934\" src=\"http:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN-300x213.jpg\" alt=\"CERCAN\" width=\"300\" height=\"213\" srcset=\"https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN-300x213.jpg 300w, https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN-768x546.jpg 768w, https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN-1024x729.jpg 1024w, https:\/\/www.philippeau.eu\/blog\/wp-content\/uploads\/2019\/04\/CERCAN.jpg 1265w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-105934\" class=\"wp-caption-text\">\u00c9tude CERCAN<\/figcaption><\/figure>\n<p>L&rsquo;<a href=\"http:\/\/www.ico-cancer.fr\/\" target=\"_blank\" rel=\"noopener noreferrer\">Institut de Canc\u00e9rologie de l&rsquo;Ouest<\/a>, site Paul Papin Angers m&rsquo;a averti par courrier d&rsquo;une \u00e9tude r\u00e9trospective (2014-2018) de l&rsquo;efficacit\u00e9 et de la tol\u00e9rance des traitements par <a href=\"http:\/\/www.philippeau.eu\/blog\/qutenza-patch-de-capsaicine-a-8\/\" target=\"_blank\" rel=\"noopener noreferrer\">patch de Capsa\u00efcine (Qutenza)<\/a> sur les douleurs neuropathiques. Il est possible de ne pas participer \u00e0 cette \u00e9tude et ne pas autoriser l&rsquo;utilisation de nos donn\u00e9es. Je ne vois aucune raison de m&rsquo;y opposer bien au contraire.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ComPaRe Depuis le 10 f\u00e9vrier 2019 je me suis inscrit sur la plateforme ComPaRe, la communaut\u00e9 des patients ayant choisi de faire avancer la recherche sur les maladies chroniques. Apr\u00e8s inscription le but est de&#8230;<\/p>\n<div class=\"more-link-wrapper\"><a class=\"more-link\" href=\"https:\/\/www.philippeau.eu\/blog\/compare-et-etude-cercan\/\"><span class=\"more-text\">Continuer la lecture<\/span><\/a><\/div>\n","protected":false},"author":1,"featured_media":105934,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[2,54],"tags":[266,264,265,386,267],"class_list":["post-105657","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cancer-poumon","category-douleurs-neuropathiques-peripheriques","tag-cohorte","tag-compare","tag-etude","tag-etude-cernan","tag-neuropathie-peripherique"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ComPaRe et \u00e9tude CERCAN<\/title>\n<meta name=\"description\" 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